Fibromyalgia

I’ve not been on here for ages again. I don’t know where the time has gone. Have been struggling with the fibromyalgia and especially low back, hip and pelvic pain which at times has been driving me absolutely insane. I find that when I’m in a lot of pain I can’t think straight, it affects my mood and I get frustrated at all the things I can’t do.

Before I had fibromyalgia I was an active person with a tidy house. I regularly went to the gym, 3-5 times a week. Walked a lot, caught up with friends. It’s amazing how many friends disappear when you have fibromyalgia. One reason is I had to keep cancelling as not feeling up to going out and people don’t believe you when you have an invisible illness. They don’t see you on the days that you’re really suffering. I don’t like people seeing me like that.

I hate when I have to take to my bed, or sit on my sofa frustrated at all the things I so want to do. When I do anything like go out or do housework I then pay for it. So annoying.

A few weeks ago an old work colleague was leaving where I used to work and it was her birthday so a group of us went for a night out. We had a lovely meal and the cocktails were 2 for £12.95. I very rarely drink but was in the mood for it and there was a great atmosphere. Afterwords we went to a pub with music. Must have had a few cocktails as I was actually able to dance. Something I’ve not done in a long time. I knew I’d suffer the next day but I was having a great time. Think I may have embarrassed my 21 year old daughter a bit as she was also on the night out.

I’ve found personally that even though I’m going to suffer I have to get on with things otherwise I wouldn’t do anything except for when the pain level is too high, then it’s the sofa or bed with hot water bottles, a good book and the television and an extra large mug of tea.

I hated that I had to give up my job, been selling a few things on vinted on better days. I could do with some cleaning fairies though. I love watching hoarding programs as makes me feel tidy. I know my house isn’t too bad, but it is for me. I like things very tidy and having fibromyalgia stops that, unfortunately.

I’m going to sit and have a cuppa in my garden now while the sun is still shining. Weather was beautiful last week but it looks like it’ll be changing this week. Hope everyone else is okay and would love to hear how other people cope with fibromyalgia or other invisible illness.