Fibromyalgia

Living with fibromyalgia is a pain and I mean literally. It’s so frustrating not being able to do all the things that you want to do. Even boring things like housework. I used to be on top of things and now all I see is all the stuff that needs doing. I love watching a program on BBC One on a Tuesday at the moment called Sort Your Life Out with Stacey Solomon because it makes me feel really tidy. Her and her team help people sort through all their stuff in their house. They have to pack everything up and it then gets displayed in a giant warehouse.

Over the next two days they have to get rid of 50% of their stuff. The rest of her team are back at the owners home cleaning and up-cycling items to make their home more practical. Stacey then helps and they organise the items they’ve kept. The end result is always amazing.

I find that with fibromyalgia I always seem to be on catch up. You have a day when you can get more done and maybe do too much and then it costs you a day or two in bed or on the sofa constantly re boiling the kettle to fill up hot water bottles because your back is in spasm and making large mugs of tea because I love tea.

It takes its toll on you sometimes because the endless cycle of being in pain and not able to do everything you once did, especially when people say you look fine or why are you not working still. Giving up my job last year was the hardest thing for me and it still makes me sad now. They should come round and see me when the pain levels are unbearable and can’t sleep, most nights. That would shut them up for sure.